On Sunday it was Polly's birthday. For some reason she decided to spend it at an Israeli dance afternoon, held in the church hall. As it turned out, the session was led by a group of messianic Jews called the New Jerusalem Dancers, and although there were quite a lot of dances there was also an awful lot of exposition of “the bible says this and so it must be true” kind. Leviticus seemed to feature prominently. The dances were fun and there were lots of opportunities for audience participation and even a buffet of typical Israeli food. I do feel I now know everything I will ever need to know about the festival of Simchat Torah though.
At one point a demonstration of the blowing of a Shofar (a rams horn) brought about my favourite comment of the afternoon. “Bring me the anti-bacterial wipes!“ Such is a time of the times.
Oh, and in case you are wondering, the boys and I gave Polly perfume (Flower by Kenzo), some books, including a replacement copy of Delia's Complete Cooking Course, a pair of boots (not wellies), and a set of allen keys.
This morning we had a visit from a number of people from the housing department who came to look at our flat with a view to extending it. It took them less than thirty seconds to conclude that unless we open a portal to another dimension our home is as big as it will ever be. They've all gone away now to see if they can think of anything else.
Interestingly, on the corner of our street a new housing development is to be built. To mollify the local planning department the developers promised to build a disabled accessible house on the site. Perfect! But then, you will be astonished to hear, they had to make some changes to the plans and the house morphed into a small flat once the contract was signed and sealed. Almost like magic.
And finally, Matty was regaling Polly at breakfast with details of a dream he had had about slipping into another dimension and having to live dressed as a teddy bear. Sam, not to be out done, announced that he too had dreamed. He had been stung by a bumble bee and slipped into another Dalmatian.
Until next time. . .
Wednesday, 14 October 2009
Friday, 9 October 2009
Polly Ate The Table Leg
As this blog cruises past entry number 200 (at How To Be An Inspiration anyway) I have news. My new rinky-dink, super-duper wheelchair is back and working. What's more, they have removed the inhibitor that stopped me going fast when the chair is tilted back. This means I can whiz a long at speed and in comfort, which is exactly what I did last night when I careened down to the village to buy some chips for supper. There was a small sensation in the chip shop when I raised the chair up and up to the high counter and handed over the money.
Having my chair back is a relief in many ways. Almost instantly several areas of pain that I'm so used to are gone with such suddenness I am caught by surprise. Simply being able to adjust my position in a near infinite number of ways keeps me both comfortable and entertained.
Of course, life being life, and my life in particular, not everything goes completely smoothly. For example, Polly ate the table leg. (I'm so tempted to leave that sentence hanging.)
The new wheelchair, what with all its multi-function bits and bobs, is a little higher than the old one. This is not a problem, except that it wouldn't fit under our dining table. This meant that the already difficult task of having a meal was further complicated by me not being able to get close enough to the table to eat. The solution? Raise the table. You can buy 'table-risers' from various disability inclined outlets but we were uncertain exactly how high the table needed to go so decided to experiment using household objects. Eventually we discovered the ideal height the table needed to go up was that of a 220g tin of Heinz baked beans. Fortunately we had a 4 pack of these little tins and the table problem was sorted.
Until, that is, the wheelchair was taken away for repair and we had to lower the table once more because now it was too high.
The new wheelchair, now repaired and restored to us, means we needed to re-raise the table. “Fetch the baked beans,” I cried. 3 tins of beans were produced. “Er. . . Where's tin number four?" Polly looked me straight in the eye, daring me to complain. “I ate them for my supper last night when I got in from work. I hadn't eaten since 7:30 that morning and it was gone 9: 00 at night and I was too tired to knock up a non-baked bean orientated meal. Any problem with that?” None whatsoever. You soon learn not to argue with a tired, hungry clown. The table, even on 3 legs, is more stable.
Until next time.
Having my chair back is a relief in many ways. Almost instantly several areas of pain that I'm so used to are gone with such suddenness I am caught by surprise. Simply being able to adjust my position in a near infinite number of ways keeps me both comfortable and entertained.
Of course, life being life, and my life in particular, not everything goes completely smoothly. For example, Polly ate the table leg. (I'm so tempted to leave that sentence hanging.)
The new wheelchair, what with all its multi-function bits and bobs, is a little higher than the old one. This is not a problem, except that it wouldn't fit under our dining table. This meant that the already difficult task of having a meal was further complicated by me not being able to get close enough to the table to eat. The solution? Raise the table. You can buy 'table-risers' from various disability inclined outlets but we were uncertain exactly how high the table needed to go so decided to experiment using household objects. Eventually we discovered the ideal height the table needed to go up was that of a 220g tin of Heinz baked beans. Fortunately we had a 4 pack of these little tins and the table problem was sorted.
Until, that is, the wheelchair was taken away for repair and we had to lower the table once more because now it was too high.
The new wheelchair, now repaired and restored to us, means we needed to re-raise the table. “Fetch the baked beans,” I cried. 3 tins of beans were produced. “Er. . . Where's tin number four?" Polly looked me straight in the eye, daring me to complain. “I ate them for my supper last night when I got in from work. I hadn't eaten since 7:30 that morning and it was gone 9: 00 at night and I was too tired to knock up a non-baked bean orientated meal. Any problem with that?” None whatsoever. You soon learn not to argue with a tired, hungry clown. The table, even on 3 legs, is more stable.
Until next time.
Saturday, 3 October 2009
Still No Wheelchair
Okay, where were we? My super-duper new wheelchair is still AWOL. Obviously it was never going to be simple to fix what with it literally having more computing power than the Apollo 11 moon landing mission. Apparently the controller has a fault. I'm told it should be sorted sometime next week. If I had any breath I'd hold it.
Talking of breath – neat segue, hey? - I'm making progress with the lung infection again. I was doing very well but on Thursday took a few steps backward when my temperature went up again. Dr Toosy has switched me to Ciprofloxacin and given me some Budesonide nebulisers. The main problem is that the whole process is so exhausting. It's not been helped by having my comfy wheelchair whipped away. My posture is not so good in the old one and the base of my right lung gets compressed. On Friday the community physiotherapist came to beat me and shake me. If she wasn't so nice I could really go off her.
That's all for now. Until next time.
Talking of breath – neat segue, hey? - I'm making progress with the lung infection again. I was doing very well but on Thursday took a few steps backward when my temperature went up again. Dr Toosy has switched me to Ciprofloxacin and given me some Budesonide nebulisers. The main problem is that the whole process is so exhausting. It's not been helped by having my comfy wheelchair whipped away. My posture is not so good in the old one and the base of my right lung gets compressed. On Friday the community physiotherapist came to beat me and shake me. If she wasn't so nice I could really go off her.
That's all for now. Until next time.
Wednesday, 30 September 2009
Wheelchair Woe
A man came to collect my ten day-old, whiz-bang, high-tech, rinky-dink, brand new, multi-thousand pound wheelchair yesterday. Apparently it's broken. It may be a programming problem or it might be a stuck micro-switch. Either way I'm not sat in it now, which is a pity because I really like it. Hopefully it will be returned to me tomorrow in fully functioning order.
I'll let you know what happens.
I'll let you know what happens.
Monday, 28 September 2009
The Blue Box
I am feeling so much better that I am beginning to wonder what all all the fuss was about. My temperature is down to normal and the infection seems to have gone. There is some residual gunk and coughing but it is as nothing compared to last week. It will take another week or so before I'm back to what passes as normal for me but I can live with that.
I would certainly have ended up on a respiratory ward at St Helier or the Brompton Hospital had it not been for one particular piece of kit. At times of crisis our home can resemble a reasonably equipped emergency facility what a BiPap ventilator, a nebuliser, ceiling hoists, profiling bed, air mattress, Oxygen, a drugs cabinet with a significant street value, and a blue box the size of a large bread-bin, known in our home as 'the cough machine', but more technically, by my consultant at least, as a Cough Assist Mechanical Insufflator-Exsufflator.
The Cough Assist Mechanical Insufflator-Exsufflator is a genuinely life saving bit of tech. Without it I would either be dead or on permanent ventilation. The machine works by clearing secretions by gradually applying a positive pressure to the airways and then rapidly switching to negative pressure. Apparently the rapid shift in pressure produces a high expiratory flow, simulating a natural cough. The reality is more akin to having someone Dyson your lungs on full power. The effect is unsettling and uncomfortable but infinitely preferable to hours of ineffectual hacking coughs that simply exhaust you, or, sessions of chest pounding physiotherapy that induce near psychopathic hatred of the person pummelling you.
Way back in 2000 I was very ill with Pneumonia resulting as a complication from Pancreatitis. I was in intensive care and high dependency wards for months and for most of the time had a tracheotomy. A tracheotomy, for those unfamiliar with the procedure, is where someone, preferably a doctor, makes a hole in your neck and feeds a tube into your lungs for air to be drawn through, or, as in my case, for someone to stick a suction tube in and vacuum your lungs for gunk. Having a nervous F2 wielding a scalpel at your throat while you are passing out from lack of Oxygen rates pretty low on my list of things to do again. The advantage of the cough machine is that it is totally non-invasive. It removes secretions without the need for someone sticking a plastic straw through an unnatural orifice in your neck. I'm not sure how much such machines cost but they must be cheaper than spending days, weeks or months in hospital.
Even today, when I am feeling so much better, I have already used the blue machine twice. Once again I am grateful to be living in a country with a national health service that provides such equipment free at the point of need.
In the light of all above, it might seem churlish to moan about another freely provided piece of absolutely necessary kit, but this morning, just at a critical juncture in the preparation for a shower, my new multi-thousand pound, state-of-the-art, rinky-dink wheelchair stopped working. The control panel LCD screen simply states there is a system error and the thing refuses to budge. Fortunately, the ever unreliable Serco, have failed to collect my old wheelchair and so I am back in that until an engineer with a degree in computer science can get here tomorrow. I have had the new chair ten days, most of those I've been too ill to do anything other than sit, so I doubt the problem is overuse. Mind you, I wouldn't put it past Matty to have reprogrammed it to play Marvel Ultimate Alliance 2.
Until next time.
Friday, 25 September 2009
Of Ben Hur and Polly
Now, where were we? Oh yes, struggling manfully against terrible illness. Right, done that. I'm utterly wiped out but well on the mend. The nasty green gunk has faded to white and there is less of it. The steroids seem to have kept the worst of the irritation caused by continuous coughing at bay and my temperature is back to normal. I know from experience that it will probably take at least another week to regain lost stamina, but, unless the children come home from school with Swine flu or typhus this week I'm probably in the clear, for now.
Thank you for all the 'best wishes' and 'get well soon's. As well as the occasional 'What? Your doctor follows you on Twitter? Cool.'
As previously mentioned, on Sunday I literally dragged myself from my sick bed to go and see Ben Hur Live! at the O2 arena in Greenwich. To be honest, had it been virtually anything else I would have forgone the experience, but how often do you get to see a Roman based theatrical extravaganza? It even promised a real chariot race. You'd have to be sick indeed to miss that.
I haven't been to the O2 since it was the much maligned Millennium Dome. It has changed a lot but the disabled parking is still rubbish. According to my wheelchair, the £10 reserved disabled parking slot we had pre-booked was 1km from the actual arena. Needless too say, we missed the very start of the show where Judah Ben Hur is born in Jerusalem on the same night as another baby is born in Bethlehem. We joined the story when Judah is reunited with his Roman childhood friend, Massala.
The stage show pretty much follows the plot of the Charlton Heston film and includes a spectacular sea battle against pirates, a Bacchanalian party, gladiatorial fights and, of course, the famous chariot race. And yes, four teams of four horses pulling chariots raced around the arena in a (carefully choreographed) thrilling race, complete with wheel falling off accident. I loved every minute and would heartily recommend it to you when the show returns in early January next year.
I paid the price for my Roman adventure in terms of exhaustion but it was worth it. Polly bought the tickets for our 16th wedding anniversary and has spent the week explaining to anyone who would listen that I am a grown up and she can't actually forbid me from risking my health in pursuit of entertainment. By the way, our actual anniversary is today. No, I didn't forget. I have bought Polly a rather stylish lamp for the living room.
So finally, happy anniversary, darling. I don't know why you love me, but I give thanks everyday that you do. All my love, always.
Until next time. Bye.
Thank you for all the 'best wishes' and 'get well soon's. As well as the occasional 'What? Your doctor follows you on Twitter? Cool.'
As previously mentioned, on Sunday I literally dragged myself from my sick bed to go and see Ben Hur Live! at the O2 arena in Greenwich. To be honest, had it been virtually anything else I would have forgone the experience, but how often do you get to see a Roman based theatrical extravaganza? It even promised a real chariot race. You'd have to be sick indeed to miss that.
I haven't been to the O2 since it was the much maligned Millennium Dome. It has changed a lot but the disabled parking is still rubbish. According to my wheelchair, the £10 reserved disabled parking slot we had pre-booked was 1km from the actual arena. Needless too say, we missed the very start of the show where Judah Ben Hur is born in Jerusalem on the same night as another baby is born in Bethlehem. We joined the story when Judah is reunited with his Roman childhood friend, Massala.
The stage show pretty much follows the plot of the Charlton Heston film and includes a spectacular sea battle against pirates, a Bacchanalian party, gladiatorial fights and, of course, the famous chariot race. And yes, four teams of four horses pulling chariots raced around the arena in a (carefully choreographed) thrilling race, complete with wheel falling off accident. I loved every minute and would heartily recommend it to you when the show returns in early January next year.
I paid the price for my Roman adventure in terms of exhaustion but it was worth it. Polly bought the tickets for our 16th wedding anniversary and has spent the week explaining to anyone who would listen that I am a grown up and she can't actually forbid me from risking my health in pursuit of entertainment. By the way, our actual anniversary is today. No, I didn't forget. I have bought Polly a rather stylish lamp for the living room.
So finally, happy anniversary, darling. I don't know why you love me, but I give thanks everyday that you do. All my love, always.
Until next time. Bye.
Tuesday, 22 September 2009
Poorly Puppy
As you can tell from the fact that I'm updating this blog, I'm still alive. I'm being very sensible, eating a little, drinking fluids, taking my medicine, having nebulisers and not attending arena based spectacles in the south-east of London. No sir, I'm a good boy.
I am, however, sick of being sick. I can't even lie back in my new whiz-bang wheelchair without drowning in self-produced fluids. Worse still, in many ways, I know I should be grateful that this is still a relatively minor illness by my standard, and I should be happy that I've not been carted off to hospital to be ventilated through a tracheotomy. Still, it's only September, and a long winter looms. Oh enough, Stephen.
Disconcertingly, my GP reads this blog, so, given my stupidity on Sunday, it was with some trepidation that I had Polly ring him to confess that the nasty green stuff in my lungs was, indeed, still nasty and still green, despite 5 days on Co-amoviclav and a course of Prednisolone. So, now, Dr T, having noted that according to Twitter, I was feeling a bit better, has forgone a switch to Ciprofloxacin but has upped the dose of Prednisolone. (He did phone to check I was actually improving – he doesn't just diagnose and prescribe based on Twitter tweets, he's a professional after all.) He's also ordered a sputum test. (I tell you all this because I know Jacq, Ronnie, and any other GPs reading this are itching to know.)
Polly went to the Chemist in the village to collect the prescription. It was not, she told me, our regular pharmacist, but another pretty young woman, who, having done the necessary identity checks, remarked, as she handed over the bag of drugs, that she had looked at my file on the pharmacy computer.
“Poor Mr Deal, ah, bless him,“ she said chirpily. “He has been a poorly puppy.” Sweet.
Polly says that in 16 years of marriage she's never thought of me as a puppy. Many other creatures however. . .
Until next time. Bye.
I am, however, sick of being sick. I can't even lie back in my new whiz-bang wheelchair without drowning in self-produced fluids. Worse still, in many ways, I know I should be grateful that this is still a relatively minor illness by my standard, and I should be happy that I've not been carted off to hospital to be ventilated through a tracheotomy. Still, it's only September, and a long winter looms. Oh enough, Stephen.
Disconcertingly, my GP reads this blog, so, given my stupidity on Sunday, it was with some trepidation that I had Polly ring him to confess that the nasty green stuff in my lungs was, indeed, still nasty and still green, despite 5 days on Co-amoviclav and a course of Prednisolone. So, now, Dr T, having noted that according to Twitter, I was feeling a bit better, has forgone a switch to Ciprofloxacin but has upped the dose of Prednisolone. (He did phone to check I was actually improving – he doesn't just diagnose and prescribe based on Twitter tweets, he's a professional after all.) He's also ordered a sputum test. (I tell you all this because I know Jacq, Ronnie, and any other GPs reading this are itching to know.)
Polly went to the Chemist in the village to collect the prescription. It was not, she told me, our regular pharmacist, but another pretty young woman, who, having done the necessary identity checks, remarked, as she handed over the bag of drugs, that she had looked at my file on the pharmacy computer.
“Poor Mr Deal, ah, bless him,“ she said chirpily. “He has been a poorly puppy.” Sweet.
Polly says that in 16 years of marriage she's never thought of me as a puppy. Many other creatures however. . .
Until next time. Bye.
Monday, 21 September 2009
How To Be Sick And Stupid
Thursday evening: start to feel a bit rough.
Thursday night: Very hot, coughing.
Friday morning: ill. Nasty green stuff evident in lung. Phone the good doctor Toosy, who must have groaned inwardly. He decides not to mess around and prescribes anti-nasty green stuff-biotics and steroids. Take Paracetamol. Use Salbutamol nebulisers. Very anxious about something.
Late Friday morning: new wheelchair arrives with accompanying engineer and physiotherapist. . Too exhausted to be excited. Will write about chair soon.
Friday afternoon and evening: miserable.
Friday night: coughing, hot, sweaty, anxious.
Saturday: sleep until 3pm. Spend rest of day bravely rallying. Eat a little risotto. Go to bed. Have taken decision. Sleep.
Sunday morning: if you are a doctor, especially my doctor, stop reading now. Went to O2 arena in Greenwich to see Ben Hur – Live. It's our anniversary this week and Polly had booked it a while ago. I sooooo wanted to see it. Fabulously spectacular, will write about it soon. Drove home over every bloody speed bump in South London.
Sunday evening: pay for earlier stupidity. The whole going to bed thing a ghastly, messy, embarrassing disaster. Apologise to carers.
Monday morning: exhausting get up. Still getting used to new wheelchair. Drugs, nebulisers and cough-assist machine. Decide to update blog.
More soon, assuming I live. Bye.
Thursday night: Very hot, coughing.
Friday morning: ill. Nasty green stuff evident in lung. Phone the good doctor Toosy, who must have groaned inwardly. He decides not to mess around and prescribes anti-nasty green stuff-biotics and steroids. Take Paracetamol. Use Salbutamol nebulisers. Very anxious about something.
Late Friday morning: new wheelchair arrives with accompanying engineer and physiotherapist. . Too exhausted to be excited. Will write about chair soon.
Friday afternoon and evening: miserable.
Friday night: coughing, hot, sweaty, anxious.
Saturday: sleep until 3pm. Spend rest of day bravely rallying. Eat a little risotto. Go to bed. Have taken decision. Sleep.
Sunday morning: if you are a doctor, especially my doctor, stop reading now. Went to O2 arena in Greenwich to see Ben Hur – Live. It's our anniversary this week and Polly had booked it a while ago. I sooooo wanted to see it. Fabulously spectacular, will write about it soon. Drove home over every bloody speed bump in South London.
Sunday evening: pay for earlier stupidity. The whole going to bed thing a ghastly, messy, embarrassing disaster. Apologise to carers.
Monday morning: exhausting get up. Still getting used to new wheelchair. Drugs, nebulisers and cough-assist machine. Decide to update blog.
More soon, assuming I live. Bye.
Tuesday, 15 September 2009
Managing The Bathroom
I'm not sure how this story will translate for international readers but it made me laugh.
Polly and I have undertaken to project manage the renovation of my sister and brother-in-law's house in Surrey. Helena and Andrew have been living and working abroad for the last few years and the house has been on the rental market. It needs a lot of work doing to it and so various quotes are being acquired. Fortunately Helena was in the country last weekend and was able to go through the various aspects of the job with us in person. She decided, rather than repair the bathrooms, she would have new ones fitted, so asked us to find out how much this would cost. I asked her if she wanted us to refit the downstairs cloakroom while we were doing the bathrooms because a third lavatory wouldn't cost much more than two.
“You might might be able to get a three for two deal or something like that,“ I observed.
“Surely, if you get buy one lavatory and get one free,” quipped Polly, “that special offer would be a BOGOF!“
As I said, it made me laugh.
Polly and I have undertaken to project manage the renovation of my sister and brother-in-law's house in Surrey. Helena and Andrew have been living and working abroad for the last few years and the house has been on the rental market. It needs a lot of work doing to it and so various quotes are being acquired. Fortunately Helena was in the country last weekend and was able to go through the various aspects of the job with us in person. She decided, rather than repair the bathrooms, she would have new ones fitted, so asked us to find out how much this would cost. I asked her if she wanted us to refit the downstairs cloakroom while we were doing the bathrooms because a third lavatory wouldn't cost much more than two.
“You might might be able to get a three for two deal or something like that,“ I observed.
“Surely, if you get buy one lavatory and get one free,” quipped Polly, “that special offer would be a BOGOF!“
As I said, it made me laugh.
Friday, 11 September 2009
Faster Than A Speeding Snail
Yesterday I had a fitting for my new wheelchair. Yes, it's the kind of wheelchair that needs fitting. Mind you, it also the kind of wheelchair that requires an engineer and a physiotherapist to explain how it works. It has so many configurations I began to think piloting a Harrier Jump-Jet would be simpler. The controller has more modes and computing power than Deep Thought.
The chair is amazing. Thanks to a grant from the Joseph Patrick Trust I have been able to have a seat-riser fitted which allows me to rise up to my standing height. The seat tilts as my current seat does, but in addition the back-rest moves independently. Each of the foot-plates can be adjusted at the press of a button. As I played with the controller I found that I could configure the seat so that for the first time in years I actually felt comfortable. The expression of relief on my face made Polly feel quite emotional. Little details like calf supports and silicon gel covered armrests add to the degree of comfort. Even the head-rest is infinitely adjustable.
Of course, this being me, not everything was perfect. The chair is significantly higher than the present one which means we need to raise our dining table using blocks. And because the motorized foot-plates are more complicated to take off the carers are going to find transfers more difficult. The chair is a little longer as well which means taking certain corners around the flat will be more challenging. I'm sure these things will lead to a deal of frustration and no doubt those frustrations will be reported on these pages but at the moment I am almost beside myself with excitement.
The wheelchair has gone away for fine tuning and adjustments, not least to reprogram the controller so that the chair goes at more than the 0.5 miles an hour it would only go yesterday. This was particularly embarrassing when I wanted to nip out to the car and check that the chair would fit in it. It took nearly 15 minutes to get round the corner while the engineer frantically phoned the office for instructions on how to access the power menu. I am assured it was only a programming glitch and can be easily fixed. I hope so or all I will be taking delivery of next week will be a very comfy armchair, albeit one that moves faster than a speeding snail.
I will keep you informed.
The chair is amazing. Thanks to a grant from the Joseph Patrick Trust I have been able to have a seat-riser fitted which allows me to rise up to my standing height. The seat tilts as my current seat does, but in addition the back-rest moves independently. Each of the foot-plates can be adjusted at the press of a button. As I played with the controller I found that I could configure the seat so that for the first time in years I actually felt comfortable. The expression of relief on my face made Polly feel quite emotional. Little details like calf supports and silicon gel covered armrests add to the degree of comfort. Even the head-rest is infinitely adjustable.
Of course, this being me, not everything was perfect. The chair is significantly higher than the present one which means we need to raise our dining table using blocks. And because the motorized foot-plates are more complicated to take off the carers are going to find transfers more difficult. The chair is a little longer as well which means taking certain corners around the flat will be more challenging. I'm sure these things will lead to a deal of frustration and no doubt those frustrations will be reported on these pages but at the moment I am almost beside myself with excitement.
The wheelchair has gone away for fine tuning and adjustments, not least to reprogram the controller so that the chair goes at more than the 0.5 miles an hour it would only go yesterday. This was particularly embarrassing when I wanted to nip out to the car and check that the chair would fit in it. It took nearly 15 minutes to get round the corner while the engineer frantically phoned the office for instructions on how to access the power menu. I am assured it was only a programming glitch and can be easily fixed. I hope so or all I will be taking delivery of next week will be a very comfy armchair, albeit one that moves faster than a speeding snail.
I will keep you informed.
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