Monday, 20 October 2008

I'm Expensive

We had a phone call from the district nurses this morning, Apparently all the confusion last week was our fault. We're not quite sure how but it certainly wasn't their fault. We didn't give them the dates or rather we didn't make sure they had written them down. And they are very busy and can't just pop round at my beck and call. And no we can't organise for my usual carers to do the job, I'm under nursing care. Oh, and my care package is very expensive as it is.


“Not as expensive as it would be if I walked out on him,” said Polly through gritted teeth. Which sort of answers a question asked of me by 'ameenab` in the comments for 'Wee`ll Meet Again`. He or she (I'm sorry 'ameenab', I really don't know) wrote -


I've been reading your blog for a while now. I have MD too and it's really helpful for me to read your stories.

One thing that gets me though - why don't you use live-in care? I have used 24 hour live-in PAs, directed by me, for ten years. I would never go back to having to go to the toilet and go to bed only when the care staff turn up. OK, so it's a bit weird having someone around all the time, but you get used to it. And the point is that you can ask them to leave you alone if you want to because you are in charge.

Your care needs are far higher than mine so I don't understand why you don't have a 24 hr package. Is this postcode lottery at work or do you just not want it?


I'm married. It is assumed by all that my beloved will meet my needs and be my live-in care. She is presumed to be my P.A., my 24 hours-a-day care package. The fact that we have two children and she works is barely taken into consideration. Polly was quite taken by the idea of live-in help but can't think where they would do the live-in part. I saw her eyeing up the shed.


I'm not sure what would happen if I insisted on a P.A. If Polly withdrew her 'care'. If. I married her because I loved her, not because I needed a carer. I still love her but I recognise I need more help than I did 15 years ago. I need a carer, yes, but l want a wife more.


Of course, there are advantages to being married to your primary carer. I have two children.