Showing posts with label Facebook. Show all posts
Showing posts with label Facebook. Show all posts

Tuesday, 31 March 2009

A Day In The Life

Polly has been off Clown Doctoring at a hospital in London somewhere. I'm not allowed to give you too many details but it involves her speaking in a west country accent and saying 'curly-wurly' a lot. Oh, and she wears a carrot on her shoulder. As she left this morning she called out to me, “Have a good day,” and then she vanished into the metropolis. I settled down for a 'good' day, by which I mean quiet, and booted up the computer to check emails and manage my football team on Facebook.


11.00am The doorbell shrills and shrieks and warbles at aircraft taking off volume to indicate someone has arrived at the front door and wants my attention. I may have mentioned before that our doorbell is VERY loud because I am disabled, and therefore, presumably deaf. (Visitors to the flat who are here when it rings often think it must be a fire alarm and start tying sheets together in the hope of making their escape.) I attempt to use our intercom system to let whoever it is in but this proves easier said than done. It is supposed to operate via an 'environmental control' system but doesn't any more, so I have to manually push buttons on a unit fitted to the wall. On bad days it can take several minutes for me to align myself in such away so as to be able to press first the 'talk' button and then the 'enter' button. Often, by the time I have, whoever it was who rang the bell has grown old and given up. Today is an okay day and I manage to let the visitor in after he has identified himself as an engineer. You can be sure that if he had said 'robber' I would have asked for further identification. The engineer turns out to be from the Royal Brompton Hospital and has come to fix the BiPap ventilator which has been beeeeeeeeeeping all night for no good reason. (Polly maintains that the alarm should only go off if I am seconds away from death, and only then if it has tried to resuscitate me by itself.) 20 minutes later the engineer gives up and replaces the machine.


11.40am The ear-splitting doorbell goes again. Once again I successfully negotiate the entry system and once again someone identifying themselves as an engineer comes in. This one, from a company whose name is made up entirely from initials, has come to fix the back door opener. He has come equipped with a young man whose job it seem is to hold things. It takes an hour of mild cursing and a lot of Allen keys before the automated door stops opening and shutting of its own accord. The young man passes things beautifully.


12.30pm Kalepo, one of my carers, arrives to help me with lunch and to go to the loo. Fortunately he knows how to let himself in so we are spared being deafened by the doorbell.


2.50pm Once more my ears are made to bleed. This time it is a specialist dermatological district nurse. My skin has been erupting in mini-pimples since a change in my medication. I thought I'd left acne back in my adolescence so I am grateful to see him. He has given me a prescription for a number of salves and lotions that should restore my skin to adulthood.


3.20pm The district nurses (or big stick nurses as Sam calls them) let themselves in and help me go to the loo again. They also wrestle with the coffee-maker, a technology they regard as suspiciously futuristic.


3.50pm Our friend Andi arrives back from the school with Matty and Sam. Within seconds they are arguing about whose turn it is to go on the Playstation 3. I do my daddy thing and make them share.


6.00pm Godfrey, another carer, arrives to help me give the boys their tea that has been in the slow cooker since Polly prepared it this morning.. He leaves 50 minutes later.


7.30pm Both boys fed, showered and ready for bed. Sam read The Avocado Baby, Matty surgically removed from computer. I am the daddy! Now, where's Polly?


7.50pm Polly returns, all curly-wurly'd out.


Saturday, 7 February 2009

25 Random Things About Me

My friend Sheryl tagged me in one of those interminable things that float around social networking sites like Facebook. Usually such things involve 'poking' and 'hugging' and sending each other plants or snowballs or beer and I don't understand them so I have a backlog of several hundred because I don't know how to stop them and I don't want to offend anyone. This one seemed fairly straightforward though, and I like Sheryl, so I did it. I simply had to write 25 random things about me. So I did. Then I realised I could post them here as well. So I did. Here they are.

25 Random Things About Me

1.
My middle name is Harry.

2.
I once had a Red Setter called Lara

3.
I went to Hartcliffe Comprehensive School.

4.
I drink coffee. Roasted coffee beans are my favourite smell.

5.
I have 2 Ivor Novello awards.

6.
I have FSH Muscular Dystrophy.

7.
I read a lot of books.

8.
I hate rhubarb and gooseberries.

9.
I can't stand getting cold.

10.
I write a blog called How To Be An Inspiration.

11.
My first girlfriend was Elaine Wentworth. We were five and it lasted over two years.

12.
My first love was... someone else.

13.
I used to be very good at making bread.

14.
Kirsty MacColl was the best.

15.
I won a silver teaspoon in a beautiful baby competition.

16.
I rank in the top 2% of the nation at General Knowledge (according to the BBC's Test the Nation).

17.
I would love to see a whale.

18.
My favourite author is Christopher Brookmyre.

19.
My first car was a red Mini reg KY55C.

20.
As a boy my favourite comic was called The Sparky.

21.
I could never do the Rubiks Cube although I was among the first to have one in the country.

22.
I love superhero comics.

23.
I tell my children Wheelchair Man bedtime stories.

24.
My first memory is of sitting in my highchair in the kitchen of 3 Krispin Way, Bristol. There were fruit and vegetables on the wallpaper.

25.
My favourite confectionery is Turkish Delight.

If you would like to comment on this post please accompany it with at least 3 random things about you!

Thursday, 20 November 2008

Lies, Damn Lies And Statistics

My cyber-friend, Blake, at I Hate Stairs, tells me he has had a problem posting a comment here at How To Be An Inspiration. As far as I can tell all is well this end but knowing my expertise with computers and internet type things I will be the last to know if my blog has contracted a problem. I would be most grateful if a few of you reading this would leave a comment so I can see if the problem is wide spread. If you do have a problem please drop me a line at – h2bai*stephendeal.org (replace the * with a @ to help foil those nasty spammers). Thanks Blake for bringing it to my attention, but I hope you don't mind if I wish the problem was yours because you, at least, have a fighting chance of knowing how to fix it. I've found that weeping and banging the computer with a shoe has very little maintenance or restorative properties. Meanwhile, check out Blake's wheelchair stalking post. Be afraid, very afraid.

Over at Disaboom, where I also post these posts, cherylberyl has asked how I came up with the figures I did for the Disaboom posts when I wrote I'm 100 Today! Okay. Well, Disaboom, although a marvellous resource, is pretty useless when it comes to tracking your blog's statistics so a degree of extrapolation is required. Google Analytics provides a smorgasbord of statistics for my How To Be An Inspiration site, so I know how many visitors I have per day and per month. I also know if it is the same demented soul visiting time and time again or lots of discerning individuals visiting once or twice. So, at Disaboom I total up the number of visits per post for the last month (not the last 30 posts) and divide by 30. This gives me an average number of visitors per day. Google Analytics reveals that I have, for example, 900 visits from 300 unique visitors over the last month on How To Be An Inspiration, so assuming Disaboom blog readers behave in much the same way as Google blog readers (and I realise that's a major assumption) then if I have had, say, 1500 visits to my Disaboom posts over the last 30 days then it is likely that 1/3 are unique visitors. Therefore it is not unreasonable to say I have a regular Disaboom readership of 500 individuals in this example. Yes, I know there are a lot of assumptions but until Disaboom stop treating every post as an unique blog then it's the best I can do. Tim, if you are reading this, maybe you can help.

And finally, a few months a go I joined Facebook, which once you get past the countless invitations to hug, grow flowers, drink beer and all manner of cyber-silliness, has proven to be great fun, putting me back in touch with several people from my dim and distant past. (Hi Brian, Tony, Jonathon etc.) I have been trying to get this blog to show up on my Facebook page but it seems to require large numbers of people prepared to concede that I write this before it will let me, and even more people prepared to admit they read it before any meaningful statistics can be gathered. If you are on Facebook, and have not already done so, then please, be my 'friend'. I'll be yours. Look for Stephen Deal and this photo.

Thank you for reading.