Showing posts with label Language. Show all posts
Showing posts with label Language. Show all posts

Monday, 15 December 2008

The Language Of Disability

If the title of this post has led you to expect a deconstruction of the social model of disability or an analysis of inclusive versus exclusive constructs of language then I'm sorry to have misled you. This post is about something far less esoteric, it is about the look of incomprehension on the faces of people I speak to. In short, this is just another Deal rant.

I would consider myself to be reasonably adept at expressing my thoughts. I can, if required, turn a phrase. Indeed people have, over the years, actually paid me to do so. I have written for television, had books published, shows performed in front of audiences of thousands and have given countless seminars and workshops. I could go on and mention the few times I have actually appeared on television and had my opinion sought, or the radio programmes in which I have featured or the occasions I have addressed auditoriums packed to their 3500 seat capacity. I would mention these things not to boast but to reinforce the fact that I am not some mono-syllabic, tongue-tied person unable to communicate and string sentences together.

I am the first to admit that when I am ill with a chest infection my diction is affected due to the emphasis of words being altered to match my breathing. But even so, I have occasionally led workshops whilst unknowingly suffering with double pneumonia. I also know that first thing in the morning, after a night on the ventilator, my voice is croaky. But a few sips of water or, better yet, coffee soon sorts that out. When I am particularly tired I know my voice slurs a little and becomes unclear, and I know that in a noisy environment I find it difficult to project my voice with sufficient volume to overcome the surrounding distractions. I know that the muscles in my face, particularly around the mouth are affected and means that it is difficult for people to take cues from the way my mouth shape the words, as we all unconsciously do. All this I know.

But, for the love of God, I do not understand the look of blank incomprehension I get whenever I open my mouth to speak to a stranger. I know that on the telephone, especially when talking to some call centre located in India, accents combined with the Dystrophy can make things complicated, so I go to some lengths to avoid such conversations. But in the real world, face to face, I do not believe I am completely unintelligible. And yet, time and time again, be it in shops or at home with new carers, with tradesmen or with Jehovah's Witnesses at the front door, I am continually met with looks of befuddled bewilderment and the aforementioned incomprehension. Okay, if the fate of the world rested with their crystal clear understanding of every word I utter, then a request for clarification is understandable.

“Did you say cut the blue wire or the red wire to defuse this 1000 mega-tonne nuclear device ticking down from 60 seconds and located in a densely populated city?” In such circumstances I would understand that you would want to be certain you had caught my meaning and not take a wild guess, but if I am waiting at a till, clutching a packet of biscuits and waving a debit card, which is more likely; that I am asking your opinion of the economic downturn or that I am asking for the price of the packet of Chocolate Digestives? Looking at your colleague and mouthing “What did he say?” does not help the situation. Equally, if you are helping me to sit up in bed and I ask you to let go of me, it is because I need to find my own point of balance, you calling for Polly to come and translate for you not only slows things down, it means you are not considering the context of the mysterious sounds I am uttering. “For God's sake, LET GO! You are going to KILL ME” as the weight of your arm pushes me over the side of the bed.

The fact of the matter, as I see it, is that some people see the disability and expect not to understand me. The more disabled I look, the less effort they put into trying. Wait a minute I hear you say. Perhaps you are deluding yourself, Stephen. Perhaps you are an incomprehensibly mumbling, speech slurring simpleton. But just moments ago the doorbell went and the groceries were delivered by a Spanish driver who seemed to understand me perfectly well and put the delivery exactly where I specified without any problem at all. And yet, when a parcel came yesterday, the delivery man, who appeared English, couldn't understand me at all when I said that yes, I would sign his delivery note. After asking me several times and me replying “Yes I can” in as many ways as I could manage, he gave up and said he'd sign it himself. It was almost as if he didn't expect to understand me, so he couldn't.

So at the risk of being misunderstood - I'll write slowly and clearly – Thank you for reading. Or as some people out there will hear – My fish pushes wheelbarrows.

Tuesday, 2 December 2008

In The Summer Of '79

I left school in the summer of 1979, at the dawn of the Thatcherite era and the end of disco. I had not applied to any colleges and I had no idea what I was going to do with the rest of my life. My parents were in the process of moving house and everything felt very up in the air. My friends were moving on with their lives; Paul to be a rock star, gigging all over the country and Europe; Darren, to manage a shoe shop in Weston-Super-Mare; and Jay to study Astrophysics at University College London. For want of anything else to do I joined a government Youth Opportunities Programme.

The YOP was one of an endless series of schemes to shoehorn young people in to the workforce. Spiralling unemployment meant that young people with few or no qualifications were finding getting work difficult and so were sent on courses to learn skills. I found myself in a group of 30 or so, mostly young men,, learning how to write job application letters and where to stick the stamp on the envelope. Even with my pitiful handful of A level results I was massively over qualified for the course. I once spent a whole afternoon learning how to give imaginary change to imaginary shoppers for imaginary goods. I would have happily endured this less than mentally challenging employment substitute indefinitely, mastering such skills as shoe lace tying and bottom wiping one after another until I was as full of life skills is it was possible to be. However, the course was held in a converted Georgian house in a road off Park Street, the steepest shopping street in Bristol, a half mile walk uphill from the bus stop. However tempting it was to learn how to open a tin or polish your shoes, the walk was too much. It was time to move on.

I was placed, courtesy of the YOP, in the administration department of the local fire brigade, where it was my highly supervised job to procure provisions and equipment for our fire fighting heroes. My first job was to locate and purchase a stool for the brigade drummer to sit upon. It is responsibility like this that builds a man. This was my first experience working in an office. There were five, including me, in the procurement department, a microcosm of offices everywhere. One man stood out, and even to this day remains the rudest man I have ever known.

George was in his mid 50s, balding, with a comb-over. He wore a brown jacket, usually with a yellow shirt straining to close across an ample belly. His nose and cheeks were a fine network of red, broken capillaries, and tufts of grey hair sprouted from his ears.. In his desk draw he kept a flat bottle of Bell's whisky from which he took surreptitious slurps through out the day, winking at me and saying it was his medicine. Most mornings, but especially on a Monday, he would crash into the office, some ten to fifteen minutes late, plonk himself at his desk, and ask each of us in turn how much sex we'd had over weekend, and in what positions. Maureen, to my left, a married woman in her 40s would sniff and tell him to mind his own business. Colin, who I would guess to have been in this early 30s would make up a ridiculous figure and go back to reading the Sun, while Barry, who was supposed to be in charge, but was a good 20 years younger than George, would flush crimson and asked George if he had completed the Leyland order in an attempt to change the subject. George ignored him. He would lean across his desk, directly opposite mine and ask me if I'd 'got any' over the weekend. He seemed convinced that as a teenager I must be promiscuous and wanted every detail. Disappointed with my mumbled and evasive answers he would regale us with his own exploits in various clubs through out the city and tell racist jokes.

When ever I hear people moaning about how PC everything is these days I think or the odious George. And even though I was barely 18 at the time I still feel ashamed that I didn't stand up against him. Even in 1979 he was a dinosaur and I can't believe he was tolerated, let alone excused because he was 'only joking'.

I was only with the fire brigade for about 4 months before moving to the civil service, ironically to work in the department that paid young people on YOP schemes.

Tuesday, 30 September 2008

Know What I Mean?

I was at school during the 1960s and 70s, an era of education that held that such formalities as grammar were restrictive when it came to creativity. I am therefore of a generation who can express myself freely but that no one can understand because we never learnt about punctuation, syntax, conjugation, adjectival modification or even spelling. As a result I've spent years struggling to get the ideas in my head down on to paper in a way that other people can understand.

I mention this because a number of you obviously share my mystification regarding formal grammar since I've had a number of comments and emails regarding Matty's homework assignment conjugating regular and irregular verbs. The reality, for most of us who learnt English in childhood, is that we do such things without thinking, thank God. It's rare for most of us to get confused about regular and irregular verbs. When was the last time you forgot that the past tense of the regular verb 'walk` is 'walked`, or that the past tense of the irregular verb 'swim' is 'swam`?

The English language is the most amazing tool for communicating great subtlety of meaning and is the only language that requires books of synonyms such as Roget's Thesaurus. It is also a language easy to get confused over. As Bill Bryson points out -

English is full of booby traps for the unwary foreigner. Any language where the unassuming word fly signifies an annoying insect, a means of travel, and a critical part of a gentleman's apparel is clearly asking to be mangled.


It's a wonder any of us manage to master it to some extent or another. Knowing a bit of basic grammar can only help. Which reminds me of a favourite joke.

Teacher: Tell me two pro nouns.
Child: Who? Me?